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Saving Sickly Children
The Tuberculosis Preventorium in American Life, 1909-1970
Connolly, Cynthia A
Rutgers University Press
Known as "The Great Killer" and "The White Plague," few diseases influenced American life as much as tuberculosis. Sufferers migrated to mountain or desert climates believed to ameliorate symptoms. Architects designed homes with sleeping porches and verandas so sufferers could spend time in the open air. The disease even developed its own consumer culture complete with invalid beds, spittoons, sputum collection devices, and disinfectants. The "preventorium," an institution designed to protect children from the ravages of the disease, emerged in this era of Progressive ideals in public health.

In this book, Cynthia A. Connolly provides a provocative analysis of public health and family welfare through the lens of the tuberculosis preventorium. This unique facility was intended to prevent TB in indigent children from families labeled irresponsible or at risk for developing the disease. Yet, it also held deeply rooted assumptions about class, race, and ethnicity. Connolly goes further to explain how the child-saving themes embedded in the preventorium movement continue to shape children's health care delivery and family policy in the United States.
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Science with a Human Face
In Honor of Roger Randall Revelle
Robert Dorfman
Harvard University Press, 1997

In October of 1992, the Harvard Center for Population and Development Studies sponsored the Roger Revelle Memorial Symposium on Population and Environment. Two dozen eminent scientists—all friends, colleagues, or students of Roger Revelle—presented papers in a broad range of disciplines that reflect the remarkable scope of Revelle’s professional and academic contributions during his lifetime. This volume is a selection of the symposium papers.

A memoir of Revelle’s exposure to poverty in Pakistan, igniting his interest in the contribution that science could make to improving the lives of people in developing countries, serves as a moving introduction to the volume. This book stands as an enduring memorial to Roger Revelle’s lifelong concern that scientific developments contribute to comfortable, civilized survival in all countries of this increasingly crowded world.

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Second Chances
Surviving AIDS in Uganda
Susan Reynolds Whyte, editor
Duke University Press, 2014
During the first decade of this millennium, many thousands of people in Uganda who otherwise would have died from AIDS got second chances at life. A massive global health intervention, the scaling up of antiretroviral therapy (ART), saved them and created a generation of people who learned to live with treatment. As clients they joined programs that offered free antiretroviral medicine and encouraged "positive living." Because ART is not a cure but a lifelong treatment regime, its consequences are far-reaching for society, families, and individuals. Drawing on personal accounts and a broad knowledge of Ugandan culture and history, the essays in this collection explore ART from the perspective of those who received second chances. Their concerns about treatment, partners, children, work, food, and bodies reveal the essential sociality of Ugandan life. The collection is based on research undertaken by a team of social scientists including both Western and African scholars.

Contributors. Phoebe Kajubi, David Kyaddondo, Lotte Meinert, Hanne O. Mogensen, Godfrey Etyang Siu, Jenipher Twebaze, Michael A. Whyte, Susan Reynolds Whyte
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Self-Interest and Universal Health Care
Why Well-Insured Americans Should Support Coverage for Everyone
Larry R. Churchill
Harvard University Press, 1994

“I’m covered—why should I foot the bill for somebody who isn’t?”

This question, unspoken but simmering at the center of the debate over universal health care coverage, comes in for a thoughtful hearing—and, perhaps, gentle corrective—in Larry Churchill’s timely book. Churchill, whose Rationing Health Care in America put the nation’s health care crisis into perspective, here does the same for our crisis of conscience over health care coverage. As Clinton and Congress spar over the financing and organization of a national health system, the true debate, this book reveals, is about moral and political values, about the meaning and ethics of health care reform.

Churchill begins by cutting through the confused discussion about rationing health care. Concerns about rationing, with all the moral and political questions they raise, deflect our attention from a more important issue, which this book brings into focus. Arguing that care is already rationed by ability to pay, Churchill suggests that the proper question is not whether to ration but how to do so fairly, and that answering requires a clear sense of the aims of a health care system. In pursuit of this necessary understanding, Churchill explores values and concepts such as security and solidarity, self-interest and social affinity, rights and responsibilities. Drawing on philosophical ideas of justice and individual responsibility, rendered here with remarkable clarity, he shows that universal care is morally as well as economically comprehensible and that a truly inclusive health care system should be seen as a common civic purpose rather than as a supply of services to be consumed. Accessible, deeply felt, and cogently argued, this book should revise the terms of the national debate over health care reform.

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The Social Medicine Reader
Gail E. Henderson, Nancy M. P. King, Ronald P. Strauss, Sue E. Estroff, and Larry R. Churchill, eds.
Duke University Press, 1997
To meet the needs of the rapidly changing world of health care, future physicans and health care providers will need to be trained to become wiser scientists and humanists in order to understand the social and moral as well as technological aspects of health and illness. The Social Medicine Reader is designed to meet this need.
Based on more than a decade of teaching social medicine to first-year medical students at the pioneering Department of Social Medicine at the University of North Carolina, The Social Medicine Reader defines the meaning of the social medicine perspective and offers an approach for teaching it. Looking at medicine from a variety of perspectives, this anthology features fiction, medical reports, scholarly essays, poetry, case studies, and personal narratives by patients and doctors—all of which contribute to an understanding of how medicine and medical practice is profoundly influenced by social, cultural, political, and economic forces.
What happens when a person becomes a patient? How are illness and disability experienced? What causes disease? What can medicine do? What constitutes a doctor/patient relationship? What are the ethical obligations of a health care provider? These questions and many others are raised by The Social Medicine Reader, which is organized into sections that address how patients experience illness, cultural attitudes toward disease, social factors related to health problems, the socialization of physicians, the doctor/patient relationship, health care ethics and the provider’s role, medical care financing, rationing, and managed care.
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The Social Medicine Reader, Volume I, Third Edition
Ethics and Cultures of Biomedicine
Jonathan Oberlander, Mara Buchbinder, Larry R. Churchill, Sue E. Estroff, Nancy M. King, Barry F. Saunders, Ronald P. Strauss, and Rebecca L. Walker, editors
Duke University Press, 2019
The extensively updated and revised third edition of the bestselling Social Medicine Reader provides a survey of the challenging issues facing today's health care providers, patients, and caregivers by bringing together moving narratives of illness, commentaries by physicians, debates about complex medical cases, and conceptually and empirically based writings by scholars in medicine, the social sciences, and the humanities.

Volume 1, Ethics and Cultures of Biomedicine, contains essays, case studies, narratives, fiction, and poems that focus on the experiences of illness and of clinician-patient relationships. Among other topics the contributors examine the roles and training of professionals alongside the broader cultures of biomedicine; health care; experiences and decisions regarding death, dying, and struggling to live; and particular manifestations of injustice in the broader health system. The Reader is essential reading for all medical students, physicians, and health care providers.
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front cover of The Social Medicine Reader, Volume II, Third Edition
The Social Medicine Reader, Volume II, Third Edition
Differences and Inequalities, Volume 2
Jonathan Oberlander, Mara Buchbinder, Larry R. Churchill, Sue E. Estroff, Nancy M. King, Barry F. Saunders, Ronald P. Strauss, and Rebecca L. Walker, editors
Duke University Press, 2019
The extensively updated and revised third edition of the bestselling Social Medicine Reader provides a survey of the challenging issues facing today's health care providers, patients, and caregivers with writings by scholars in medicine, the social sciences, and the humanities.
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Sociology and the Field of Public Health
Edward Suchman
Russell Sage Foundation, 1963
This work is the fifth in a series of bulletins on the applications of sociology to various fields of professional practice prepared under the joint sponsorship of the American Sociological Association and the Russell Sage Foundation. Previous bulletins have dealt with applications of sociology in the fields of corrections, mental health, education, and military organization. Dr. Suchman has performed an important service in his clear delineation of the great potential sociology and related disciplines have for sharpening our understanding of the social factors in health and disease, for intelligent planning and mounting of appropriate action programs, and for improving the organizational structure and institutional mechanisms of the health professions themselves.
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The Sounds of Furious Living
Everyday Unorthodoxies in an Era of AIDS
Matthew Kelly
Rutgers University Press, 2024

Four decades have passed since reports of a mysterious “gay cancer” first appeared in US newspapers. In the ensuing years, the pandemic that would come to be called AIDS changed the world in innumerable ways. It also gave rise to one of the late twentieth century’s largest health-based empowerment movements. Scholars across diverse traditions have documented the rise of the AIDS activist movement, chronicling the impassioned echoes of protestors who took to the streets to demand “drugs into bodies.”

And yet not all activism creates echoes. Included among the ranks of 1980s and 1990s-era AIDS activists were individuals whose expressions of empowerment differed markedly from those demanding open access to mainstream pharmaceutical agents. Largely forgotten today, this activist tradition was comprised of individuals who embraced unorthodox approaches for conceptualizing and treating their condition. Rejecting biomedical expertise, they shared alternative clinical paradigms, created underground networks for distributing unorthodox nostrums, and endorsed etiological models that challenged the association between HIV and AIDS. The theatre of their protests was not the streets of New York City’s Greenwich Village but rather their bodies. And their language was not the riotous chants of public demonstration but the often-invisible embrace of contrarian systems for defining and treating their disease.

The Sounds of Furious Living seeks to understand the AIDS activist tradition, identifying the historical currents out of which it arose. Embracing a patient-centered, social historical lens, it traces historic shifts in popular understanding of health and perceptions of biomedicine through the nineteenth and twentieth centuries to explain the lasting appeal of unorthodox health activism into the modern era. In asking how unorthodox health activism flourished during the twentieth century’s last major pandemic, Kelly also seeks to inform our understanding of resistance to biomedical authority in the setting of the twenty-first century’s first major pandemic: COVID-19. As a deeply researched portrait of distrust and disenchantment, The Sounds of Furious Living helps explain the persistence of movements that challenge biomedicine’s authority well into a century marked by biomedical innovation, while simultaneously posing important questions regarding the meaning and metrics of patient empowerment in clinical practice.
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Speech and Song at the Margins of Global Health
Zulu Tradition, HIV Stigma, and AIDS Activism in South Africa
Steven P. Black
Rutgers University Press, 2019
Speech and Song at the Margins of Global Health tells the story of a unique Zulu gospel choir comprised of people living with HIV in South Africa, and how they maintained healthy, productive lives amid globalized inequality, international aid, and the stigma that often comes with having HIV. By singing, joking, and narrating about HIV in Zulu, the performers in the choir were able to engage with international audiences, connect with global health professionals, and also maintain traditional familial respect through the prism of performance. The focus on gospel singing in the narrative provides a holistic viewpoint on life with HIV in the later years of the pandemic, and the author’s musical engagement led to fieldwork in participants’ homes and communities, including the larger stigmatized community of infected individuals. This viewpoint suggests overlooked ways that aid recipients contribute to global health in support, counseling, and activism, as the performers set up instruments, waited around in hotel lobbies, and struck up conversations with passersby and audience members. The story of the choir reveals the complexity and inequities of global health interventions, but also the positive impact of those interventions in the crafting of community.
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Strong Hearts and Healing Hands
Southern California Indians and Field Nurses, 1920–1950
Clifford E. Trafzer
University of Arizona Press, 2021
In 1924, the United States began a bold program in public health. The Indian Service of the United States hired its first nurses to work among Indians living on reservations. This corps of white women were dedicated to improving Indian health. In 1928, the first field nurses arrived in the Mission Indian Agency of Southern California. These nurses visited homes and schools, providing public health and sanitation information regarding disease causation and prevention.

Over time, field nurses and Native people formed a positive working relationship that resulted in the decline of mortality from infectious diseases. Many Native Americans accepted and used Western medicine to fight pathogens, while also continuing Indigenous medicine ways. Nurses helped control tuberculosis, measles, influenza, pneumonia, and a host of gastrointestinal sicknesses. In partnership with the community, nurses quarantined people with contagious diseases, tested for infections, and tracked patients and contacts. Indians turned to nurses and learned about disease prevention. With strong hearts, Indians eagerly participated in the tuberculosis campaign of 1939–40 to x-ray tribal members living on twenty-nine reservations. Through their cooperative efforts, Indians and health-care providers decreased deaths, cases, and misery among the tribes of Southern California.
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Stronger Together / Kammanatut Atausigun / Iknaqataghaghluta Qerngaamta
Bering Strait Communities Respond to the COVID-19 Pandemic
Amy Phillips-Chan
University of Alaska Press, 2024
A collection of first-person narratives offering a vivid, nuanced look at the lived and shared experiences of Bering Strait communities in the COVID-19 era, Stronger Together is a unique collaboration between the Carrie M. McLain Memorial Museum in Nome, Alaska, and over forty community members, artists, and poets from across the Bering Strait region.
 
The featured artists narrativize works inspired by the pandemic, from walrus ivory masks and sealskin face coverings to scenes of subsistence activities and informal family portraits. Full-color illustrations enliven the text with vibrant images of local community members, activities, and artwork from those who call this northern expanse of rolling tundra and icy seas home.
 
Stronger Together features hopeful and redemptive behind-the-scenes perspectives of how remote Alaskan communities endured the COVID-19 pandemic and appeals to anyone looking for hopeful and redemptive stories of this time, as well as museum, public arts, and culture program administrators; student and scholars of Indigenous and Alaska Native languages and culture; the Alaska anthropology community; artists and art enthusiasts; and those with a general interest in Alaska.
 
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Structural Intimacies
Sexual Stories in the Black AIDS Epidemic
Mackenzie, Sonja
Rutgers University Press, 2013
One of the most relevant social problems in contemporary American life is the continuing HIV epidemic in the Black population. With vivid ethnographic detail, this book brings together scholarship on the structural dimensions of the AIDS epidemic and the social construction of sexuality to assert that shifting forms of sexual stories—structural intimacies—are emerging, produced by the meeting of intimate lives and social structural patterns. These stories render such inequalities as racism, poverty, gender power disparities, sexual stigma, and discrimination as central not just to the dramatic, disproportionate spread of HIV in Black communities in the United States, but to the formation of Black sexualities.

Sonja Mackenzie elegantly argues that structural vulnerability is felt—quite literally—in the blood, in the possibilities and constraints on sexual lives, and in the rhetorics of their telling. The circulation of structural intimacies in daily life and in the political domain reflects possibilities for seeking what Mackenzie calls intimate justice at the nexus of cultural, economic, political, and moral spheres. Structural Intimacies presents a compelling case: in an era of deepening medicalization of HIV/AIDS, public health must move beyond individual-level interventions to community-level health equity frames and policy changes
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Sugar and Tension
Diabetes and Gender in Modern India
Weaver, Lesley Jo
Rutgers University Press, 2019
Women in North India are socialized to care for others, so what do they do when they get a disease like diabetes that requires intensive self-care? In Sugar and Tension, Lesley Jo Weaver uses women’s experiences with diabetes in New Delhi as a lens to explore how gendered roles and expectations are taking shape in contemporary India. Weaver argues that although women’s domestic care of others may be at odds with the self-care mandates of biomedically-managed diabetes, these roles nevertheless do important cultural work that may buffer women’s mental and physical health by fostering social belonging. Weaver describes how women negotiate the many responsibilities in their lives when chronic disease is at stake. As women weigh their options, the choices they make raise questions about whose priorities should count in domestic, health, and family worlds. The varied experiences of women illustrate that there are many routes to living well or poorly with diabetes, and these are not always the ones canonized in biomedical models of diabetes management.  
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Superbugs
An Arms Race against Bacteria
William Hall, Anthony McDonnell, and Jim O'Neill
Harvard University Press, 2018

Antibiotics are powerful drugs that can prevent and treat infections, but they are becoming less effective as a result of drug resistance. Resistance develops because the bacteria that antibiotics target can evolve ways to defend themselves against these drugs. When antibiotics fail, there is very little else to prevent an infection from spreading.

Unnecessary use of antibiotics in both humans and animals accelerates the evolution of drug-resistant bacteria, with potentially catastrophic personal and global consequences. Our best defenses against infectious disease could cease to work, surgical procedures would become deadly, and we might return to a world where even small cuts are life-threatening. The problem of drug resistance already kills over one million people across the world every year and has huge economic costs. Without action, this problem will become significantly worse.

Following from their work on the Review on Antimicrobial Resistance, William Hall, Anthony McDonnell, and Jim O’Neill outline the major systematic failures that have led to this growing crisis. They also provide a set of solutions to tackle these global issues that governments, industry, and public health specialists can adopt. In addition to personal behavioral modifications, such as better handwashing regimens, Superbugs argues for mounting an offense against this threat through agricultural policy changes, an industrial research stimulus, and other broad-scale economic and social incentives.

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Surviving HIV/AIDS in the Inner City
How Resourceful Latinas Beat the Odds
Chase, Sabrina
Rutgers University Press, 2011
Surviving HIV/AIDS in the Inner City explores the survival strategies of poor, HIV-positive Puerto Rican women by asking four key questions: Given their limited resources, how did they manage an illness as serious as HIV/AIDS? Did they look for alternatives to conventional medical treatment? Did the challenges they faced deprive them of self-determination, or could they help themselves and each other? What can we learn from these resourceful women?



Based on her work with minority women living in Newark, New Jersey, Sabrina Marie Chase illuminates the hidden traps and land mines burdening our current health care system as a whole. For the women she studied, alliances with doctors, nurses, and social workers could literally mean the difference between life and death. By applying the theories of sociologist Pierre Bourdieu to the day-to-day experiences of HIV-positive Latinas, Chase explains why some struggled and even died while others flourished and thrived under difficult conditions. These gripping, true-life stories advocate for those living with chronic illness who depend on the health care "safety net." Through her exploration of life and death among Newark's resourceful women, Chase provides the groundwork for inciting positive change in the U.S. health care system.
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